Here you’ll find links to resources we’ve created based on our palliative care and end of life research as well as others we have found valuable. Feel free to use them for education and training purposes, and if you’d like us to send you copies for download, please use the contact form to let us know.
Check out our video series ‘What Makes you Happy’ that we produced with our community research partner Dementia Auckland. We co-created digital stories with five people with dementia and their families. Everyone who took part in the project did so because they wanted to challenge attitudes and stigma that is often associated with dementia. We offer a big thank you to Amrita, Martin and Sanesh Francis, Terry and Jan Way, Maureen and Reg Houlder, Jeff and Doreen Attwood and Sinivia and Tai Papali’i.
Our music video, ‘I’ll Care for You’ highlights important research themes that relate to caring for older Pacific people at the end of life. It was created through a Community-Based Participatory Research (CBPR) project led by Dr Lisa Williams and Dr Ofa Dewes. In the video commentary below, Ofa, offers more explanation on the themes. If you’d like a copy of the song, ‘I’ll Care for You’ which also embeds the themes in the lyrics, please use the Contact page to let us know.
Farewell, Haere Atu Ra – a 28-minute film highlighting the real-life stories of family/whanau caregivers caring for an older relative at the end of life. Using the words of our research participants, Maori and non-Maori actors bring to life their experiences of care in eight vignettes. (Names and identifying details of the participants have been changed.) We asked 20 NZ health professionals to evaluate the film and one thing they told us is that it prompted them to reflect on issues facing families and how their actions affect famlies’ wellbeing. The film is a collaboration between us and Associate Professors Shuchi Kothari and Sarina Pearson in the University’s Department of Media, Film and Television. It’s based on the research findings from Te Pakeketanga: Living and Dying in Advanced Age, funded by the Health Research Council of New Zealand.
Maori digital stories – Eight short videos created by Maori research participants about their experiences caring for kaumatua (esteemed older relatives) at the end of life. Includes commentaries after each story by Tess Moeke-Maxwell and Stella Black about take away messages for health professionals who interact with Maori whanau caring for kaumatua. The link above is to the 42-minute film that contains all the stories. You can also find the individual stories by visiting our YouTube channel: Palliative Care TV.
The Accidental Carer – Our community advisor and good friend Ros Capper has just published a book to help other family carers caring for a family member or friend at the end of life. It’s a really valuable resource – innovative and groundbreaking! Here’s a news article to find out more: Accidental Carer and if you want to get in touch with Ros to buy the book, find her on Facebook here. In the video below she answered our questions about the book.